Friday, June 02, 2006
I'm Up Here!
Can you see me? Look up. Further. Put your head all the way back.
Hey!
Hi.
Ya know, I like it up here. But, sadly,I don't think I can stay long. I have 'lots of things to do and life must go on. I made reservations to come again. They can't guarantee a spot, but they assured me that I am always welcomed back. I put in a good word for you too. Maybe we could meet here? I know you'll love it.
That's how I felt at Gabe's appointment today. We have finally completed the list of specialists that I created when he was first diagnosed and seemed to continue to grow as the months went on. But, I did it. Done, done and done. The Pediatric Neurologist was the last one. I waited for 4 months to see the top, head honcho. I filled out the 5 page questionnaire and prepared myself for the long wait that always happens in the waiting room and then in the "closet" the nurse puts you in. I must say, minus the heavy (cough, cough) cologne, he was quite engaging. The doctor was friendly, took avid notes on his lap top and seemed genuinely interested. (I caught myself looking around to see if I was actually in a doctors office) He did have a lot of specific signs around the room like, Don't touch the scale, diapers are to be changed in the hall bathroom, etc. They were all done on very bright paper, bold font and all over the walls. I felt like I had to review the signs around the room before I chose to do anything but sit. Gabe clearly tested the necessity of each request.
Now, I must explain that Gabe had already been diagnosed through a well known doctor at a prestigious university that started the Play Project (Known as Floortime), a Developmental Pediatrician, Pyschologist, and Behavior Specialist ( A team from a leading hospital). I'm mentioning all that, because when I say that I had no idea why we were consulting a Neurologist it would make some sense, everyone else seemed to have covered everything. I read online what they test for and reasons to see one, but Gabe only met one reason, he has PDD-NOS. For now, that's it. No meds, no seizures, no motor issues (knock on wood). So, when the doctor asked me why I was there, all I could say was, "Isn't Autism a Neurological Disorder? " It just made sense to consult with you too. He nodded in agreement.
After an hour of playing, talking and bringing out the medical equipment,
I left with this....
Gabe has PDD-NOS.
He will be fine. He will probably marry (If he wants to) His language will eventually catch up and he will be able to enjoy life just the way he is.
Then he said a short disclaimer...something to the effect of " I can't guarantee it, but he looks that way to me."
That's when I floated up. Up and up and away.